Web Survey Bibliography
Title Participation rates of childhood cancer survivors to self-administered questionnaires: a systematic review
Author Kilsdonk, E.; Wendel, E.; van Dulmen-den Broeder, E.; van Leeuwen, F.E.; Van Den Berg, M. H.; Jaspers, M. W. M.
Source European Journal of Cancer Care, Early View
Year 2016
Database Willey InterScience
Access date 30.08.2016
Abstract
This review aimed to assess participation rates of childhood cancer survivors (CCS) invited to fill out a health-related questionnaire. Additionally, effects of study and CCS characteristics on participation rates were examined. PubMed, Web of Science, Ovid (EMBASE) and CINAHL databases were searched. Publications included were questionnaire-based studies among CCS diagnosed with cancer before the age of 21, alive at least 5 years past diagnosis and aged 16 years or older at the time of study. Thirty-five studies were included; the median participation rate was 65%. Sixteen studies reported information about CCS actively declining participation (median rate 5%). Five study characteristics seemed to influence participation rates: the use of reminders and incentives, the option to answer a shortened questionnaire, the recruitment of participants through their general practitioner and a pre-notification before sending out the questionnaire. Furthermore, CCS characteristics related to improved participation were female gender, Caucasian ethnicity and a higher educational level. The results of this study will help to improve the (methodological) quality of future questionnaire-based studies among CCS, thereby increasing our knowledge about late effects among this group of survivors.
Access/Direct link European Journal of Cancer Care Homepage (Abstract) / (Full text)
Follow-up bibliography entriesMissing information
AvailabilityIn-press, to be published
Year of publication2016
Bibliographic typeJournal article
Web survey bibliography (4086)
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